For the next 36 days (from March 28 to May 2), I will be contacting and writing about 36 extraordinary members of the House of Representatives. They are all extraordinary in that they form the bipartisan Congressional Spina Bifida Caucus, and so they strive to address the unique needs of the spina bifida community in the U.S. My “mission” is to write to them, and urge them to make quality of life, and not solely prevention, a priority on their agenda in Congress. It has come to my attention that education about spina bifida is critical during all the stages of development– from planning to prevent spina bifida through the consumption of folic acid, to comprehensive education about spina bifida once it is diagnosed. We need to educate, starting with the physicians and other healthcare providers, so that they will be made aware of the potential that each child with spina bifida possesses.
I see this Congressional Caucus as a great starting point, as they have already committed to educating their colleagues in Congress about spina bifida.
Who knew there are a lot of liberals in California? Just so you know, I am not going to be picking and choosing which representative to write to each day. Rather I’m using a list from 2009 on the Spina Bifida Association Web site, and I am going exactly in the order that they are listed there.
I am going to tell you about Rep. Henry Waxman of California. In 2006, he became Chairman of the House Oversight and Government Reform Committee. He’s also Chairman of the Committee on Energy and Commerce. Always proud of his Jewish heritage, Rep. Waxman is a member of the American Jewish Congress, and is a Congressional Appointee for the United States Holocaust Memorial Council.
Some of the other caucuses he is involved in are the Congressional Children’s Working Group, and the Congressional Task Force Against Anti-Semitism, of which he is a co-founder.
He’s also a staunch advocate for healthcare issues. Rep. Waxman has led a lot of the legislation that is related to health or quality of life.
I truly hope you are all enjoying your Easter weekend. My allergies are still acting up, but I’m going out later with a friend, so that should take my mind off my troubles!
Remember to please share this blog with everyone you know– on your Facebook or MySpace pages, Twitter, etc.
God Bless you all! Have a safe and happy Easter!