For the next 36 days (from March 28 to May 2), I will be contacting and writing about 36 extraordinary members of the House of Representatives. They are all extraordinary in that they form the bipartisan Congressional Spina Bifida Caucus, and so they strive to address the unique needs of the spina bifida community in the U.S. My “mission” is to write to them, and urge them to make quality of life, and not solely prevention, a priority on their agenda in Congress. It has come to my attention that education about spina bifida is critical during all the stages of development– from planning to prevent spina bifida through the consumption of folic acid, to comprehensive education about spina bifida once it is diagnosed. We need to educate, starting with the physicians and other healthcare providers, so that they will be made aware of the potential that each child with spina bifida possesses.
It is always encouraging to me to learn about politicians in this country that focus more on the specific issues, rather than in purchasing the entire ideological package of either party.
Rep. Ileana Ros-Lehtinen is one of the former Congresspeople.
While she did vote against the health care reform bill, and also against stem cell research, she also sponsored some vital pieces of legislation concerning children’s health and quality of life. These include the Children’s Health Protection Act, which ensures that all children will have access to health coverage, regardless of a preexisting condition.
Another example of Rep. Ros-Lehtinen’s commitment to quality of health is her co-sponsorship of the Children’s Access to Reconstructive Evaluation & Surgery (CARES) Act. This legislation attempts to tailor health plans according to the needs of children with congenital, chronic conditions. Yet another one sponsored by Ros-Lehtinen is the Breast Cancer Patient Protection Act.
Ros-Lehtinen is the sole Republican member of the LGBT Congressional Caucus, and supports allowing gay people to serve openly in the military.
As you may have noticed, I am behind one entry. My apologies. I will get to work on the second one for today, so please stay tuned!