For the next 36 days (from March 28 to May 2), I will be contacting and writing about 36 extraordinary members of the House of Representatives. They are all extraordinary in that they form the bipartisan Congressional Spina Bifida Caucus, and so they strive to address the unique needs of the spina bifida community in the U.S. My “mission” is to write to them, and urge them to make quality of life, and not solely prevention, a priority on their agenda in Congress. It has come to my attention that education about spina bifida is critical during all the stages of development– from planning to prevent spina bifida through the consumption of folic acid, to comprehensive education about spina bifida once it is diagnosed. We need to educate, starting with the physicians and other healthcare providers, so that they will be made aware of the potential that each child with spina bifida possesses.
It happens to the best of us. At least, that’s what people tell you when they know you made a mistake and they don’t want you to feel upset. Today, during a thorough update of the notebook where all “Holdin’ Out” – related information is recorded, Mom and I realized I had been lagging behind a day! I had posted the same “day number” twice. I really am sorry for the confusion this must have caused. I can now proudly say that we are up-to-date in our records.
What’s more, 26 copies of the letter I wrote to Congress were mailed today. I only have ten more copies I need to send out, so I will get to it after this weekend!
Now, let’s talk politics. (Some more.)
Rep. Carolyn McCarthy of New York state is deeply committed to improving the quality of life of her constituents in the Long Island area. She has over four decades of experience as a nurse, and so she genuinely recognizes the need for a better healthcare system and for services to the community.
Congresswoman McCarthy is on the Subcommittee on Healthy Families and Communities, as well as on the Subcommittee on Health, Employment, Labor, and Pensions.
She is a strong advocate for gun control– an issue she has a very personal interest in. In 1993, her husband was shot to death by a mass murderer while on a Long Island commuter train. Her son was seriously injured.
Rep. McCarthy has dyslexia, and testified in support of the Individuals with Disabilities Education Act (IDEA). She’s an honorary board member of Americans Against Gun Violence, and is on the Board of Directors for New Yorkers Against Gun Violence.
It humbles me that Rep. McCarthy has turned tragedy into hope through her tireless efforts in regulating guns.
And, while I was beginning to write this entry tonight, I got a Facebook update that has me elated! For those who haven’t yet heard, I’m going to the Clearwater’s Fun n’ Sun Jazz Weekend to see Spencer Day! We leave sometime tomorrow, and it’s about a two-hour drive.
I’ve been posting a few more times on his Facebook page, so that he doesn’t forget me, or our cause. I was beginning to get a little anxious, to tell the truth, because I had no idea what this event was really going to be like, and if he’ll have time to socialize with his fans before or after his performance.
Just as I’m about to have a coronary, I check my Facebook page again, and see the following comment under the comment I posted:
“Hi Laurita! Yes! Come find me after the show. Would love to get more details on your cause. See you tomorrow! xo”
Once again, I apologize for any hair-raising shrieks that were heard in the greater Orlando area. 🙂
So, as you see, for an uneventful day spent at home, it’s been pretty darn eventful!
Oh yeah– here’s a photo I took of the Congressional post office I’m running here at home:
So, now I’m signing off to do some last-minute packing for a one-night stay! I’m really excited, and I hope to take some pictures and share them with you.
The traveling continues…I guess I’m a “vagabond,” too.