For the next 36 days (from March 28 to May 2), I will be contacting and writing about 36 extraordinary members of the House of Representatives. They are all extraordinary in that they form the bipartisan Congressional Spina Bifida Caucus, and so they strive to address the unique needs of the spina bifida community in the U.S. My “mission” is to write to them, and urge them to make quality of life, and not solely prevention, a priority on their agenda in Congress. It has come to my attention that education about spina bifida is critical during all the stages of development– from planning to prevent spina bifida through the consumption of folic acid, to comprehensive education about spina bifida once it is diagnosed. We need to educate, starting with the physicians and other healthcare providers, so that they will be made aware of the potential that each child with spina bifida possesses.
Even though I should be running around like a headless chicken during these, the last few days of classes, I’m trying not to stress too badly. I’m working on the whole “social” part of my life right now. I was able to meet my friend Stephanie for an awesome conversation before I went to class at UCF. She’s always interested in how this initiative is doing, and always offers the most innovative ideas. More than just having people to talk to, it’s great to be able to bounce ideas off each other. When people with spina bifida, hydrocephalus, or any other chronic condition are isolated from their peers, they are missing on the intellectual stimulus that humans get from group interaction.
So, those are my thoughts on the human psyche and spina bifida for now.
Let’s talk about Rep. David Price of North Carolina. He’s a member of the Democratic Caucus Faith Working Group, and he is Co-Founder of the Future of American Media Caucus. In addition to that, he’s part of the National Service Caucus, focusing on service to the community.
Congressman Price is a volunteer for Habitat for Humanity. He’s also on the Health Sector Advisory Council for the Fuqua School of Business at Duke University.
I look forward to sending him a letter very soon, and I hope to find out if he still active on the Spina Bifida Caucus.
I’ve got a final tomorrow for legal aspects of psychology. Good luck to all the students in your final weeks of classes!
Good night, and (really) good luck,