For the next 36 days (from March 28 to May 2), I will be contacting and writing about 36 extraordinary members of the House of Representatives. They are all extraordinary in that they form the bipartisan Congressional Spina Bifida Caucus, and so they strive to address the unique needs of the spina bifida community in the U.S. My “mission” is to write to them, and urge them to make quality of life, and not solely prevention, a priority on their agenda in Congress. It has come to my attention that education about spina bifida is critical during all the stages of development– from planning to prevent spina bifida through the consumption of folic acid, to comprehensive education about spina bifida once it is diagnosed. We need to educate, starting with the physicians and other healthcare providers, so that they will be made aware of the potential that each child with spina bifida possesses.
Rep. Marcy Kaptur of Ohio is a moderate Democrat. Unfortunately, she voted against funding for stem cell research which could improve the lives of so many of us. But, she’s a member of the National Association for the Advancement of Colored People, and also a member of the Congressional Caucus for Women’s Issues.
She’s also a member of the Budget Committee and the Appropriations Committee.
It seems that Congresswoman Kaptur voted “yes” on the healthcare bill, but I can’t be sure. I’m going to have to find out later on.
I’m so sorry to have to cut this short, but I have a final exam tomorrow, and my eyelids are literally closing on me!
Please keep “tuning in” each day/night to find out about exciting updates in the near future! Thanks to all for your continued support, and also to people who have become a fan (or “liked,” whatever) of “Holdin’ Out for a Hero” on Facebook! Please click on the badge on the right side of this blog to join in support of the spina bifida cause.
I have a very good feeling about where this initiative is going.