For the next 36 days (from March 28 to May 2), I will be contacting and writing about 36 extraordinary members of the House of Representatives. They are all extraordinary in that they form the bipartisan Congressional Spina Bifida Caucus, and so they strive to address the unique needs of the spina bifida community in the U.S. My “mission” is to write to them, and urge them to make quality of life, and not solely prevention, a priority on their agenda in Congress. It has come to my attention that education about spina bifida is critical during all the stages of development– from planning to prevent spina bifida through the consumption of folic acid, to comprehensive education about spina bifida once it is diagnosed. We need to educate, starting with the physicians and other healthcare providers, so that they will be made aware of the potential that each child with spina bifida possesses.
It’s been an awfully long day, and I’m glad I get to go to bed soon after this. My on-campus final exams are done (thank God!), and what I have left will be online assignments that I have every intention of finishing by the end of the week. We’ll see.
Rep. Steven LaTourette of Ohio is a self-described “moderate Republican.” A former prosecutor, he is on the Medical Technology Caucus, is Co-Founder and Co-Chair of the House Nursing Caucus, and is on the Congressional Biotechnology Caucus.
Congressman LaTourette is also on the Caucus on Caucuses. I’m dead serious. Check it out on Project Vote Smart if you don’t believe me! (Deep down, I always knew there existed a caucus for caucuses. I mean, it was the only topic left to cover! And who could forget the Frozen Foods Caucus?)
But…I digress. I honestly feel as if I’m hitting a wall with finding useful facts about these Congresspeople. Mercifully enough, there are only a few left. (It’s very difficult when the only information available to you about a politician is the information he/she wants you to see.)
If you should be questioning anything at this point, let it be this: how can legislators hope to effect any kind of change when they are spread too thin? How can they truly be making a difference? Spina bifida is important to all of us. Let’s make sure that Congress knows it.
Peace & Love,