I’m Laura Tellado. I’ve decided to write a blog that will chronicle my search for a spokesperson for people with the condition that I have, spina bifida. It is the #1 cause of paralysis in children in America. It is also more common than muscular dystrophy, multiple sclerosis, and cystic fibrosis combined.
But, why should you even care about this blog? Well, there are currently 166,000 people living in the U.S. with spina bifida. And the fact of the matter is that while taking folic acid can help prevent having a child with spina bifida, there is no known cure for it, and my goal is to encourage people to get the conversation going about spina bifida, and how we can all help people through research and quality of life programs.
“Holdin’ Out for a Hero” is my year-long effort to find a national spokesperson for the spina bifida community, and also to generate public interest and awareness of this cause.
So, if you’re interested, please share this link with people you know, and join me as I embark on this uncertain yet exciting journey…
For any questions, comments, or suggestions, please E-mail me at: firstname.lastname@example.org.